OD: Phil Bourne, Jennie Larkin, Leslie Derr, Angel Horton, Sonynka Ngosso
NLM: Betsy Humphreys, Mike Huerta, Lisa Lang, Jerry Sheehan
NCI: Warren Kibbe, Sherri De Coronado, Dianne Reeves, Denise Warzel
NCATS: Elaine Collier
NIEHS: Cindy Lawler
BD2K, BMIC, NLM, NCI, NCATS, and NIEHS jointly organized a workshop for NIH staff to explore the role of CDEs in NIH Data Sharing. This workshop convened 40 representatives of the NIH community that were interested in CDEs with the goals of:
NIH Common Data Element (CDE) Initiatives Overview Pre-Workshop Webinar
Prior to the workshop, a preparatory webinar was held on September 8, 2015. This webinar included presentations from several ongoing CDE programs by NIH staffs that are engaged in the BMIC CDE Working Group.
Chairs: Melissa Haendel, Ph.D. and Christopher Chute, M.D., Dr.P.H.
NIH Lead Organizers: Cindy P. Lawler, Ph.D.
Executive Summary: https://datascience.nih.gov/sites/default/files/bd2k/docs/ExecSumm_CBDMSworkshopFEB2015.pdf
BD2K is formulating approaches to encourage development and facilitate the use of data-related (including metadata) standards more broadly across the biomedical research community and is, therefore, interested in the issues involved in developing Community-Based Standards (CBS). The goals of this workshop are:
This workshop is open to invited participants only.
Co-Chairs: Michael Kahn, M.D., Ph.D. and David Madigan, Ph.D.
NIH Lead Organizers: Elaine Collier, M.D. and Gina Wei, M.D., M.P.H.
This think tank convened a small number of experts specifically to address methods for optimizing the robustness and use of data from the Electronic Health Records (EHR) for a variety of clinical research purposes that fall within NIH’s domain. Given the potential broad scope of this topic, participants were asked to focus primarily on issues related to the use of EHR on the ‘back end’ (i.e. the imperfect data as currently collected), rather than strategies to improve the quality of EHR data collected on the ‘front end’ (e.g., data entered by clinicians). Experts in accessing EHR data and experts in study design and analysis methods for research using EHR data presented the challenges, solutions, and needs based on their experience and knowledge of the field.
Workshop Report: EHR Data Methods Workshop Report
Agenda (with links to slides presentations): EHR Data Methods Workshop
As a component of the BD2K program, the National Institutes of Health is hosting a diverse group of game developers and biomedical researchers in a think tank exploring research games and the application of game methods and technologies for biomedical research. The purpose of this think tank is to explore the opportunities in and begin to address challenges of how these two communities – Game Developers and Biomedical Researchers – currently collaborate, exchange data science & visualization expertise, and develop games for enabling and performing biomedical research that addresses important science and health issues that affect everyone. This day and a half meeting will focus discussions on the following themes: 1) the technical and social infrastructure that enables Game Developers and Scientific Researchers to first find each other and then create new games, tools, and interfaces to research, 2) the common elements across biomedical research problems and games that both communities can address, and 3) the marketplace for matching games-amenable problem holders to solution providers.
Join Day 1 WebEx (Dial In #: 1-240-276-6338)
Meeting ID #: 732 503 587
Join Day 2 WebEx (Dial In #: 1-240-276-6338)
Meeting ID #: 731 351 883
The goal of this workshop was to gather a group of external experts in biomedical data science, including some members of the original Data and Informatics Working Group, to discuss the future of data science at NIH. The information gathered at the meeting will be used to chart future efforts of the newly-formed ADDS office and the BD2K program.
Agenda: ADDS Meeting Agenda
Participant List: ADDS Meeting Attendees
Co-Chairs: Dr. Owen White and Dr. Asif Dhar
The Software Discovery workshop explored the challenges and opportunities associated with citing, tracking, and sharing biomedical software. We were interested in gaining an understanding of approaches for making software easier to locate via computer-readable meta-data, digital identifiers, and other methods. In addition, the workshop focused on identifying the needs of biomedical software users and developers as they seek to find, cite, and use these tools in biomedical research. Finally, we identified potential barriers and incentives to adoption and use of these different discovery, citation, tracking methods. The workshop was organized around three major sessions: Finding and Tracking Software; Software Citation and Other Incentives; and Software Reproducibility.
Videocast Day 1: http://videocast.nih.gov/summary.asp?live=14073
Videocast Day 2: http://videocast.nih.gov/summary.asp?live=14171
Co-Chairs: Susanna Sansone, PhD and David Kennedy PhD.
The overall goal of this workshop is to learn what has worked and what has not worked in community-based standards efforts. Participants will have experience in leading specific community based standards initiatives. Prior to the workshop, participants will be asked to address in writing answers to specific questions regarding formulating, conducting, and maintaining such efforts. This information will be used to facilitate focused and actionable discussion at the workshop. Issuance of a Request for Information soliciting comment from the broader community on some of the key issues addressed in the workshop is currently envisioned.
Agenda: Frameworks for Community-Based Standards Efforts (PDF 40.7KB)
Participant List: Roster of Invited Participants (PDF 32KB)
Co-Chairs: Robert M. Califf, M.D. and Daniel R. Masys, M.D.
This workshop will identify actionable steps that NIH can take (alone and with others) to enable research use of clinical data, e.g., in pragmatic clinical trials, observational studies, and genome-phenome relationships using electronic health records and other clinical data. In particular, we will consider needs for: 1) research and development of new technologies and methods; 2) common infrastructure to enable the future research scenarios; and 3) policy changes necessary to facilitate progress. Read More
Videocast Day 2: http://videocast.nih.gov/summary.asp?Live=13124
Chair: Francine Berman, Ph.D.
This workshop seeks to identify the least duplicative and burdensome, and most sustainable and scalable method to create and maintain an NIH Data Catalog. An NIH Data Catalog would make biomedical data findable and citable, as PubMed does for scientific publications, and would link data to relevant grants, publications, software, or other relevant resources. The Data Catalog would be integrated with other BD2K initiatives as part of the broad NIH response to the challenges and opportunities of Big Data and seek to create an ongoing dialog with stakeholders and users from the biomedical community.
Co-chairs: Karen Bandeen-Roche, Ph.D and Zak Kohane, M.D., Ph.D.
This workshop provided recommendations that will guide NIH staff in the development of long- and short-term training initiatives, which aim to prepare and empower the biomedical research community to take full advantage of Big Data. The workshop will (a) identify the knowledge and skills needed by individuals and by collaborating teams to work productively with biomedical Big Data, and (b) discuss resources and programs needed to help both trainees and practicing scientists acquire the identified knowledge and skills.
Agenda: Workshop on Enhancing Training for Biomedical Big Data Agenda (PDF 149KB)
Videocast Day 1: http://videocast.nih.gov/summary.asp?live=12972
Videocast Day 2: http://videocast.nih.gov/summary.asp?live=12974