Skip to Main Content

BD2K Workshops

BD2K Organized Workshops

  • 30

    NIH Common Data Elements (CDE) Initiatives Overview Workshop

    September 30, 2015

    Planning Committee:

    OD:  Phil Bourne, Jennie Larkin, Leslie Derr, Angel Horton, Sonynka Ngosso

    NLM:  Betsy Humphreys, Mike Huerta, Lisa Lang, Jerry Sheehan

    NCI:   Warren Kibbe, Sherri De Coronado, Dianne Reeves, Denise Warzel

    NCATS:   Elaine Collier

    NIEHS:   Cindy Lawler


    Executive Summary

    BD2K, BMIC, NLM, NCI, NCATS, and NIEHS jointly organized a workshop for NIH staff to explore the role of CDEs in NIH Data Sharing. This workshop convened 40 representatives of the NIH community that were interested in CDEs with the goals of:

    • Supporting NIH-wide understanding of current activities and opportunities related to CDEs.
    • Identify current barriers/challenges for the adoption and use of CDEs by NIH-funded researchers, both intramural and extramural.
    • Identify possible ways to modify development, implementation, and use of CDEs to increase adoption and value to research.
    • Identify incentives and opportunities for involvement of relevant communities in CDE development, use, and re-use.
    • Develop evaluation plans for CDEs to test their assumed utility.
    • Identify opportunities to improve coordination in the development of CDEs for research use and in infrastructure for developing and making them accessible.
    • Determine how best to support CDE activities in the context of BD2K.

    NIH Common Data Element (CDE) Initiatives Overview Pre-Workshop Webinar

    Prior to the workshop, a preparatory webinar was held on September 8, 2015.  This webinar included presentations from several ongoing CDE programs by NIH staffs that are engaged in the BMIC CDE Working Group.

    Webcast Recording and Meeting Slides

  • 25

    NIH BD2K Workshop on Community-Based Data and Metadata Standards

    February 25, 2015

    Chairs: Melissa Haendel, Ph.D. and Christopher Chute, M.D., Dr.P.H.
    NIH Lead Organizers: Cindy P. Lawler, Ph.D.

    Executive Summary:

    BD2K is formulating approaches to encourage development and facilitate the use of data-related (including metadata) standards more broadly across the biomedical research community and is, therefore, interested in the issues involved in developing Community-Based Standards (CBS). The goals of this workshop are:

    • Effective approaches, processes, and activities that could advance the community-based standards landscape (e.g., creating a collaborative workspace or an advising structure toward standards development, extension, or adoption).
    • Gaps in community-based data standards of relevance to biomedical research, including real use-cases (e.g., emerging fields and technologies, or research domains with multiple existing data standards that could benefit from additional work, integration and/or reconciliation).
    • Lessons learned from existing CBS efforts, particularly examples with field-tested processes and infrastructure or known examples of failures by CBS efforts.
    • Common challenges in CBS development (e.g., methods for community engagement or building interoperability with other related standards).
    • Considerations for evaluating progress and milestones to assess data standards development and utility.
    • Effective approaches for addressing the need to sustain useful standards, and to update existing standards as a field develops.

    This workshop is open to invited participants only.

  • 11

    BD2K EHR Data Methodologies for Clinical Research: Perspectives from the Field Think Tank

    December 11, 2014

    Co-Chairs: Michael Kahn, M.D., Ph.D. and David Madigan, Ph.D.
    NIH Lead Organizers: Elaine Collier, M.D. and Gina Wei, M.D., M.P.H.

    This think tank convened a small number of experts specifically to address methods for optimizing the robustness and use of data from the Electronic Health Records (EHR) for a variety of clinical research purposes that fall within NIH’s domain. Given the potential broad scope of this topic, participants were asked to focus primarily on issues related to the use of EHR on the ‘back end’ (i.e. the imperfect data as currently collected), rather than strategies to improve the quality of EHR data collected on the ‘front end’ (e.g., data entered by clinicians). Experts in accessing EHR data and experts in study design and analysis methods for research using EHR data presented the challenges, solutions, and needs based on their experience and knowledge of the field.

    Workshop Report: EHR Data Methods Workshop Report


    Agenda (with links to slides presentations): EHR Data Methods Workshop

    Contacts: Elaine Collier and Gina Wei

  • 8

    NIH BD2K Think Tank: Game Developers and Biomedical Researchers

    December 8, 2014

    December 8-9, 2014 
    Co-Chairs: Ben Sawyer and Markus Covert, Ph.D.
    NIH Lead Organizers: David Miller, Ph.D. and Jennifer Couch, Ph.D.

    Report | Agenda | Participant List

    As a component of the BD2K program, the National Institutes of Health is hosting a diverse group of game developers and biomedical researchers in a think tank exploring research games and the application of game methods and technologies for biomedical research. The purpose of this think tank is to explore the opportunities in and begin to address challenges of how these two communities – Game Developers and Biomedical Researchers – currently collaborate, exchange data science & visualization expertise, and develop games for enabling and performing biomedical research that addresses important science and health issues that affect everyone. This day and a half meeting will focus discussions on the following themes: 1) the technical and social infrastructure that enables Game Developers and Scientific Researchers to first find each other and then create new games, tools, and interfaces to research, 2) the common elements across biomedical research problems and games that both communities can address, and 3) the marketplace for matching games-amenable problem holders to solution providers.


    Join Day 1 WebEx (Dial In #: 1-240-276-6338) 
    Meeting ID #: 732 503 587 
    Password: Dcb@12345 

    Join Day 2 WebEx (Dial In #: 1-240-276-6338) 
    Meeting ID #: 731 351 883 
    Password: Dcb@12345 

    Twitter: #BD2K #ResearchGames

  • 3

    ADDS Data Science Workshop

    September 3, 2014

    Introduction | BD2K Overview | Training Overview | NIH Commons Overview

    The goal of this workshop was to gather a group of external experts in biomedical data science, including some members of the original Data and Informatics Working Group, to discuss the future of data science at NIH. The information gathered at the meeting will be used to chart future efforts of the newly-formed ADDS office and the BD2K program.


    Agenda: ADDS Meeting Agenda

    Participant List: ADDS Meeting Attendees


  • 12

    BD2K Software Discovery Workshop

    May 12, 2014

    Co-Chairs: Dr. Owen White and Dr. Asif Dhar

    Workshop Report | Agenda | Participant List

    The Software Discovery workshop explored the challenges and opportunities associated with citing, tracking, and sharing biomedical software. We were interested in gaining an understanding of approaches for making software easier to locate via computer-readable meta-data, digital identifiers, and other methods. In addition, the workshop focused on identifying the needs of biomedical software users and developers as they seek to find, cite, and use these tools in biomedical research. Finally, we identified potential barriers and incentives to adoption and use of these different discovery, citation, tracking methods. The workshop was organized around three major sessions: Finding and Tracking Software; Software Citation and Other Incentives; and Software Reproducibility.



    Twitter Feed:#bd2kSDW

    Videocast Day 1:

    Videocast Day 2:

  • 25

    Frameworks for Community-Based Standards Efforts

    September 25, 2013

    Co-Chairs: Susanna Sansone, PhD and David Kennedy PhD.

    Workshop Summary | Workshop Report

    The overall goal of this workshop is to learn what has worked and what has not worked in community-based standards efforts. Participants will have experience in leading specific community based standards initiatives.  Prior to the workshop, participants will be asked to address in writing answers to specific questions regarding formulating, conducting, and maintaining such efforts.  This information will be used to facilitate focused and actionable discussion at the workshop.  Issuance of a Request for Information soliciting comment from the broader community on some of the key issues addressed in the workshop is currently envisioned.

    Agenda: Frameworks for Community-Based Standards Efforts (PDF 40.7KB)
    Participant List: Roster of Invited Participants (PDF 32KB)

  • 11

    Enabling Research Use of Clinical Data

    September 11, 2013

    Co-Chairs: Robert M. Califf, M.D. and Daniel R. Masys, M.D.

    Agenda | Biographies | Workshop Report| Workshop Site

    This workshop will identify actionable steps that NIH can take (alone and with others) to enable research use of clinical data, e.g., in pragmatic clinical trials, observational studies, and genome-phenome relationships using electronic health records and other clinical data. In particular, we will consider needs for: 1) research and development of new technologies and methods; 2) common infrastructure to enable the future research scenarios; and 3) policy changes necessary to facilitate progress. Read More



    Videocast Day 1:

    Videocast Day 2:

  • 21

    NIH Data Catalog

    August 21, 2013

    Chair: Francine Berman, Ph.D.

    Workshop Summary | Agenda | RFI Response Summary| Participant List

    This workshop seeks to identify the least duplicative and burdensome, and most sustainable and scalable method to create and maintain an NIH Data Catalog. An NIH Data Catalog would make biomedical data findable and citable, as PubMed does for scientific publications, and would link data to relevant grants, publications, software, or other relevant resources. The Data Catalog would be integrated with other BD2K initiatives as part of the broad NIH response to the challenges and opportunities of Big Data and seek to create an ongoing dialog with stakeholders and users from the biomedical community.


  • 29

    Workshop on Enhancing Training for Biomedical Big Data

    July 29, 2013

    Co-chairs: Karen Bandeen-Roche, Ph.D and Zak Kohane, M.D., Ph.D.

    RFI (NOT-HG-13-003) | RFI Summary | Workshop Report

    This workshop provided recommendations that will guide NIH staff in the development of long- and short-term training initiatives, which aim to prepare and empower the biomedical research community to take full advantage of Big Data. The workshop will (a) identify the knowledge and skills needed by individuals and by collaborating teams to work productively with biomedical Big Data, and (b) discuss resources and programs needed to help both trainees and practicing scientists acquire the identified knowledge and skills.


    Agenda: Workshop on Enhancing Training for Biomedical Big Data Agenda (PDF 149KB)

    Videocast Day 1:

    Videocast Day 2:

Back to Top