FOA Title: 
Request for Information (RFI): Input on Sustaining Biomedical Data Repositories
Grant Type: 
Primary IC: 
Release Date: 
Feb 18 2015
Expiration Date: 
AC Source: 
Request Information RFI): Input Sustaining Biomedical Data Repositories Notice Number: NOT-ES-15-011 Key Dates Release Date:     February 18, 2015 Response Date:  March 18, 2015 Related Announcements None Issued National Institute Environmental Health Sciences NIEHS) National Cancer Institute NCI) National Human Genome Research Institute NHGRI) National Institute Allergy Infectious Diseases NIAID) National Institute Drug Abuse NIDA) National Institute General Medical Sciences NIGMS) Office Strategic Coordination Common Fund) Purpose Request Information RFI) to solicit comments ideas economic, technical, policy administrative approaches toward enhancing long-term sustainability biomedical data repositories. Background ability harvest wealth information contained biomedical Big Data” the potential advance our understanding human health disease; however, enormity Big Data creates major organizational analytical impediments accelerating pace scientific discovery. biomedical datasets become increasingly large, diverse, complex, tax conventional methods sharing, managing, analyzing data. Furthermore, researchers’ abilities capitalize biomedical Big Data science-based approaches limited poor data accessibility interoperability, lack appropriate tools, insufficient training. response the opportunities challenges presented the dawning era Big Data biomedical research, NIH launched Big Data Knowledge BD2K) initiative a trans-NIH initiative cultivate digital research enterprise within biomedicine, facilitate discovery support new knowledge, to maximize community engagement. Biomedical research an increasingly data intensive enterprise due part the rapid advance many life science technologies. data enterprise created multitude repositories, are growing both scale complexity, the preservation distribution data across scientific community. challenge the scientific community to develop effective means sustaining biomedical data repositories knowledge therein.   growing datasets flat research budgets around world, challenge sustaining repositories straining capacity current funding approaches fulfill need.  is essential develop new, innovative business models.  addition, NIH considering repositories be integrated within larger biomedical digital research enterprise as accelerate our capability find, access, reuse, interoperate information across diverse data types.  address challenges, BD2K seeks information approaches, business models, ideas will inform NIH improving value current mechanisms developing new mechanisms sustain biomedical data repositories a long-term basis; developing strategies, technologies business models accommodate rapidly evolving, interdisciplinary research needs requiring access multiple data types a variety resources. Information Requested stakeholders an interest strategies address sustainability biomedical data repositories invited provide information. you choose, can categorize area expertise including that apply: Biomedical science researcher Bioinformatician Data scientist Standard developer maintainer Research data repository manager Library information scientist Data curator Professional society officer Funder Publisher Administrator president, provost, dean equivalents academic non-profit organizations) Non-profit employee Tool services vendor Biotech company employee Business developer Economist other financial expert Your response also include detailed roles within industry, government, academia the history experiences relevant repositories. NIH seeking information addresses, is limited to, following areas: Financial Models – New business models sustaining digital repositories, including not limited examples cited  Innovation – Sustaining data repositories while enabling new innovations finding, accessing, integrating and reusing contents a wide variety stakeholders. Evaluation  - Criteria determine data repositories require sustained funding models no longer need be sustained, including, not limited metrics measuring value given repositories data within those repositories. Best Practices - Current, new, emerging means practices sustain data repositories the long-term. Partnerships - type, form, governance partnerships ensure long-term access essential data repositories including, not limited to, private-sector organizations, non-profit foundations, universities, national international government agencies, combinations thereof. Technical – Technological developments needed sustain data repositories a cost-effective while furthering accessibility usability a broad set stakeholders. Human Capital – Models enhance efficiency the application human capital associated data repositories. Life Cycle – Consideration the evolution value, cost, scale data repositories emerge, reach maturity, either gain lose relevance the long term. Submitting Response responses must submitted March 18, 2015. Please include Notice number NOT-ES-15-011 the subject line. Responders free address any all the categories listed above. submitted information be reviewed NIH staff. Responses this RFI voluntary. Please not include any proprietary, classified, confidential, sensitive information your response. NIH use information submitted response this RFI its discretion will provide comments any responder's submission. collected information be reviewed NIH staff, appear reports, may shared publicly an NIH website. Government reserves right use any non-proprietary technical information summaries the state the science, any resultant solicitation(s). NIH use information gathered this RFI inform development future funding opportunity announcements. RFI for information planning purposes only should be construed a solicitation as obligation the part the Federal Government, National Institutes Health NIH), individual NIH Institutes Centers. NIH does intend make any awards based responses this RFI to otherwise pay preparation any information submitted for Government's of such information. basis claims against U.S. Government shall arise a result a response this request information from Government’s of such information. Inquiries Please direct inquiries to: Allen Dearry, Ph.D. National Institute Environmental Health Sciences NIEHS) Telephone: 919-541-3068 Email:
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