FAQs: NOSI to Support FAIR Biomedical Repositories

The National Institutes of Health’s (NIH) Office of Data Science Strategy (ODSS) recently announced a Notice of Special Interest (NOSI) to strengthen NIH-funded biomedical data repositories to better enable data discoverability, interoperability, and reuse by aligning with the FAIR and TRUST principles and using metrics to measure their effectiveness (NOT-OD-23-044). The intent is to provide an opportunity for existing repositories of all sizes, and at different stages of establishment, to increase “FAIR”-ness and “TRUST”-worthiness to improve their usage, utility, and impact throughout the data resource lifecycle.

Please refer to this site regularly for updates to frequently asked questions (FAQs) and other announcements related to this NOSI.


Award Recipients
Principal InvestigatorInstitutionProject TitleRepository Weblink
Eric Ravussin, Ph.D.Louisiana State Universityhttps://my.pbrc.edu/NORC/NORCRepository/Landing
Chris Rorden, Ph.D.University of South Carolinahttps://github.com/rordenlab/AphasiaResearchCohortQuery
Molly A. Bogue, Ph.D.;The Jackson Laboratory, Bar Harbor, Maine, USA 
Nadine Martin, Ph.D., CCC-SLPTemple Universityhttps://hope2.monqcle.com/
Vikash Gilja, Ph.D.University of California, San Diego 
Joshua Orvis, M.S.Institute for Genome Sciences, University of Maryland School of Medicinewww.umgear.org
Brian MacWhinney, Ph.D.Carnegie Mellon Universityhttps://talkbank.org
Carl Kesselman, Ph.D., M.Eng.University of Southern Californiahttps://www.facebase.org
Linda Brzustowicz, M.D., FAPARutgers Universityhttps://www.nimhgenetics.org/
Dalane Kitzman, M.D.Wake Forest University School of Medicinehttps://www.peppercenter.org/public/dsplASDR.cfm
Carol Bult, Ph.D.;\The Alliance of Genome Resources and the Mouse Genome Database 
The Jackson Laboratory
Jeffrey Grethe, Ph.D.University of California, San Franciscohttps://odc-tbi.org
Darrell Hurt, Ph.D.National Institute of Allergy and Infectious Diseases, National Institutes of Healthhttps://dbaasp.org
Meghan McCarthy, Ph.D.National Institute of Allergy and Infectious Diseases, National Institutes of Health 
Quan Chen, Ph.D.National Institute of Allergy and Infectious Diseases, National Institutes of Healthhttps://www.immport.org/home
Rebecca Rodriguez, Ph.D.National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Healthhttps://repository.niddk.nih.gov/home/
Jennifer Fostel, Ph.DNational Institute of Environmental Health Sciences, National Institutes of Healthhttps://cebs.niehs.nih.gov/cebs/

Contact Information

For more information, please contact reposupport@nih.gov.

This page last reviewed on June 7, 2024