Tuesday, June 29, 2021
June 29, 11 a.m.- 3 p.m. ET
The National Institutes of Health (NIH) Office of Data Science Strategy (ODSS) and the National Library of Medicine (NLM) are hosting a workshop on June 29 from 11 a.m. to 3 p.m. ET to advance the use of Fast Health Care Interoperability Resources® (FHIR®) in biomedical research. The goal of this workshop is to convene experts with the knowledge and experience in using FHIR in research to inform approaches that advance data exchange, accessibility, interoperability, and harmonization.
This one-day event will focus on the researchers pioneering the use of FHIR in research. The workshop will bring together patient advocates, technologists, researchers, and health care providers to explore the suitability and role of FHIR in research and how NIH can advance the use of FHIR in research.
Agenda
*Note all times are in EDT
| Time | Details |
|---|---|
|
11:00 a.m. – 11:10 a.m. |
Welcome Susan Gregurick, Ph.D., Director, ODSS |
| 11:10 a.m. – 11:50 a.m. |
Opening Keynote Joshua Denny, M.D., M.S., CEO, The All of UsTM Research Program |
| 11:50 a.m. – 12:40 p.m. |
Session I: Leveraging FHIR to Utilize Patient-Generated Data from Wearable or Mobile Devices in Research Session 1 will discuss wearable or mobile devices that are developed and deployed adhering to FHIR standards for biomedical research. Topics will include successes and challenges in creating these applications and utilizing the data collected by these devices to communicate with other compliant systems. Moderator Allison Heath, Ph.D., Director, Data Technology and Innovation, Children’s Hospital of Philadelphia Speakers Ida Sim M.D., Ph.D., Professor, University of California, San Francisco; Founder, Open mHealth Kristen Miller, Dr.P.H., CPPS, Scientific Director, MedStar Health |
| 12:40 p.m. – 1:00 p.m. | Break |
| 1:00 p.m. – 2:00 p.m. |
Session II: FHIR in Population-Based Studies Population-based studies on risk factors, clinical interventions, health outcomes, and related topics require access to patients’ clinical data. Researchers will discuss current studies utilizing FHIR-enabled access and exchange of clinical data, including successes and opportunities for improving the FHIR specification and FHIR-enabled tools. Moderator Amy Cramer, RN, M.MCi., CPHQ, Director, Global Product Development Strategic Partnerships, Pfizer; and Co-Chair, Vulcan Accelerator Speakers Kenneth Mandl, M.D., M.P.H., Director of Computational Health Informatics, Harvard University Bob Freimuth, Ph.D., Associate Professor of Biomedical Informatics, Mayo Clinic Robert Carroll, Ph.D., Assistant Professor, Vanderbilt University |
| 2:00 p.m. – 2:10 p.m. | Break |
| 2:10 p.m. – 2:45 p.m. |
Discussion: The Future of FHIR for Research Moderator Paul Harris, Ph.D., Professor, Vanderbilt University Panelists will join us again for a discussion of the future of FHIR for research purposes. We will revisit the opportunities and challenges highlighted by the panelists and engage the audience in a discussion of current and potential solutions to the obstacles researchers face in realizing opportunities that technologies like FHIR present. |
| 2:45 p.m. – 3:00 p.m. |
Wrap-Up and Closing Remarks Teresa Zayas Cabán, Ph.D., Assistant Director for Policy Development, NLM |
| 3:00 p.m. | Adjournment |