December Data Sharing and Reuse Seminar

Johanna Goderre, MPH. will present "Opportunities to Advance Research for Children, Adolescents, and Young Adults with Cancer through Secondary Data Sharing in the New National Childhood Cancer Registry Data Platform" on December 13, 2024, from 12:00 p.m.–1:00p.m. ET.

About the Seminar

The National Cancer Institute has been working with central cancer registries, medical and pharmacy claims processors, and healthcare providers like children's hospitals, NCI-supported Cancer Centers, and radiation oncology providers through the National Childhood Cancer Registry. The new Data Platform combines population-based cancer registry and real-world data across the cancer care continuum and into survivorship for secondary data analysis by all kinds of researchers, including students. It will improve researchers’ ability to accelerate our scientific understanding of cancer in children, adolescents, and young adults.

About the Speaker

Ms. Goderre is the Technical Lead for the National Childhood Cancer Registry. She holds an MPH and GIS certification with over 20 years’ experience in health research and evaluation, public health informatics, health systems delivery, and the information systems necessary to support analysis and insight in those fields.  She draws from her experiences in epidemiologic research studies, healthcare systems, and health information exchange efforts to deliver high-quality data and bioinformatics IT systems for state and federal governments. The National Childhood Cancer Registry (NCCR) Data Platform is a groundbreaking tool that addresses infrastructure gaps by increasing accessibility, sharing, and reuse of data.

About the Seminar Series

The seminar is open to the public and registration is required each month. Individuals who need interpreting services and/or other reasonable accommodations to participate in this event should contact Allison Hurst at 301-670-4990. Requests should be made at least five days in advance of the event.

The National Institutes of Health (NIH) Office of Data Science Strategy hosts this seminar series to highlight exemplars of data sharing and reuse on the second Friday of each month at noon ET. The monthly series highlights researchers who have taken existing data and found clever ways to reuse the data or generate new findings. A different NIH institute or center will also share its data science activities each month.