Wednesday, July 29, 2020
Register to Attend Virtually
A summary of this workshop is now available at https://datascience.nih.gov/executive-summary-covid-19-jumpstart-workshop.
The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.
NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.
The goals and objectives of the workshop are to:
- Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
- Review existing platforms within the NIH and how they approach COVID-19 use cases.
- Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
- Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
- Consider governance, data access committees, eligibility, and confidentiality in data use.
- Understand the impact of social determinants of health on COVID-19 research.
- Take forward the steps to make a call for action.
Follow the event on Twitter and join the conversation using #NIHdata.
Jumpstart Workshop Moderators, Panelists, Speakers, and Researchers Bios
| Session | Moderator | Panelists | Duration (EST) |
|---|---|---|---|
| Opening Remarks | Warren Kibbe Patricia Brennan | 11:00 – 11:10 a.m. | |
| Keynote on COVID-19 | Eric Topol | 11:10 – 11:40 a.m. | |
| Background | Susan Gregurick | 11:40 – 11:50 a.m. | |
| Acquiring and Linking Data from Different Clinical Environments | Lesley Curtis | George Hripcsak Chris Chute Jessie Tenenbaum | 11:50 a.m. – 12:50 p.m. |
| Lunch Break | |||
| Creating and Using Platforms | Justin Guinney | Joshua Denny Melissa Haendel Alastair Thomson | 1:30 – 2:20 p.m. |
| Generalizability, Reproducibility, & Validity | Robert Califf | Amy Abernethy Philip Payne Judy Murphy | 2:30 – 3:20 p.m. |
Things to Consider: Governance, IRB, DACs, Eligibility
| Stan Ahalt Sam Michael | Craig Hayn John Wilbanks Mike Tartakovsky Jaime Guidry Auvil | 3:30 – 4:20 p.m. |
| Considering Issues of Diversity and Representativeness | Monica Webb Hooper | Oluwadamilola “Lola” Fayanju | 4:30 – 5:00 p.m. |
| Finalize Vision and Next Steps | Robert Grossman Patricia Brennan | 5:00 – 5:30 p.m. |