Skip to main content
  • U.S. Department of Health & Human Services
  • National Institutes of Health
  • Division of Program Coordination, Planning, and Strategic Initiatives (DPCPSI)
  National Institutes of HealthOffice of Data Science Strategy National Institutes of HealthOffice of Data Science Strategy National Institutes of HealthOffice of Data Science Strategy National Institutes of Health Office of Data Science Strategy National Institutes of Health Office of Data Science Strategy National Institutes of Health Office of Data Science Strategy National Institutes of Health Office of Data Science Strategy
  • ODSS Intranet (NIH Staff)
  • Email icon
  • LinkedIn icon
  • Twitter icon
  • Home
    • Data Infrastucture
    • Fair Data and Repositories
    • Tools & Analytics
    • Training, Workforce Initiatives and Community Engagement
    • Clinical Informatics and FHIR®
    • Artificial Intelligence at NIH
  • Strategic Plan
  • Resources
    • STRIDES Initiative
    • NIH Data Repositories
    • Common Data Elements (CDE)
    • Data Sharing Policies
  • Research Funding
  • News & Events
    • News
    • Events
    • Data Curation Network – Event Series
    • GREI Collaborative Webinar Series
    • NIH Data Sharing and Reuse Seminar Series
    • Event Recordings and Summaries
  • About
    • Vision and Mission
    • Director's Corner
    • Data Science Policy Council
    • Scientific Data Council
    • Staff
    • Supported NIH Director Awardees
    • Contact

COVID-19

  • Public health information from CDC
  • Research information from NIH  | Español
  • NIH staff guidance on coronavirus (NIH Only)
  • NIH and other federal agencies have made COVID-19 data available through several Open-Access Data and Computational Resources
  • Jumpstart Executive Summary–innovative approaches to make clinical and related COVID-19 data more accessible to researchers studying the pandemic

Wednesday, July 29, 2020

NIH to Host Virtual Community Workshop on Jumpstarting Access to Clinical Data for COVID-19 Research

Register to Attend Virtually

Coronavirus

A summary of this workshop is now available at https://datascience.nih.gov/executive-summary-covid-19-jumpstart-workshop. 

The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.

NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.

The goals and objectives of the workshop are to:

  • Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
  • Review existing platforms within the NIH and how they approach COVID-19 use cases.
  • Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
  • Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
  • Consider governance, data access committees, eligibility, and confidentiality in data use.
  • Understand the impact of social determinants of health on COVID-19 research.
  • Take forward the steps to make a call for action.

Workshop registration is on a first come, first serve basis. Register now for virtual attendance and join the Slack channel to connect with other participants.

Follow the event on Twitter and join the conversation using #NIHdata. 

Jumpstart Workshop Moderators, Panelists, Speakers, and Researchers Bios

Agenda
Session Moderator Panelists Duration (EST)
Opening Remarks

Warren Kibbe
Patricia Brennan

  11:00 – 11:10 a.m.
Keynote on COVID-19 Eric Topol   11:10 – 11:40 a.m.
Background Susan Gregurick   11:40 – 11:50 a.m.

Acquiring and Linking Data from Different Clinical Environments

Lesley Curtis

George Hripcsak
Chris Chute
Jessie Tenenbaum

11:50 a.m. – 12:50 p.m.
Lunch Break      
Creating and Using Platforms Justin Guinney

Joshua Denny
Melissa Haendel
Alastair Thomson

1:30 – 2:20 p.m.
Generalizability, Reproducibility, & Validity Robert Califf

Amy Abernethy
Philip Payne
Judy Murphy

2:30 – 3:20 p.m.

Things to Consider: Governance, IRB, DACs, Eligibility


Security Confidentiality

Stan Ahalt
Sam Michael

Craig Hayn
John Wilbanks
Mike Tartakovsky
Jaime Guidry Auvil

3:30 – 4:20 p.m.

Considering Issues of Diversity and Representativeness

Monica Webb Hooper

Oluwadamilola “Lola” Fayanju 4:30 – 5:00 p.m.
Finalize Vision and Next Steps Robert Grossman
Patricia Brennan
  5:00 – 5:30 p.m.

Footer

  • Office of Data Science Strategy
  • Site Map
  • Web Policies and Notices
  • FOIA
  • No Fear Act
  • HHS Vulnerability Disclosure
  • DPCPSI Home
  • NIH Home
  • Office of the Inspector General
  • USA.gov

NIH…Turning Discovery Into Health®

National Institutes of Health, 9000 Rockville Pike, Bethesda, Maryland 20892

U.S. Department of Health and Human Services

Back to Top