NIH to Host Virtual Community Workshop on Jumpstarting Access to Clinical Data for COVID-19 Research

Wednesday, July 29, 2020

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A summary of this workshop is now available at

The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.

NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.

The goals and objectives of the workshop are to:

  • Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
  • Review existing platforms within the NIH and how they approach COVID-19 use cases.
  • Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
  • Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
  • Consider governance, data access committees, eligibility, and confidentiality in data use.
  • Understand the impact of social determinants of health on COVID-19 research.
  • Take forward the steps to make a call for action.

Follow the event on Twitter and join the conversation using #NIHdata. 

Jumpstart Workshop Moderators, Panelists, Speakers, and Researchers Bios

SessionModeratorPanelistsDuration (EST)
Opening RemarksWarren Kibbe
Patricia Brennan
 11:00 – 11:10 a.m.
Keynote on COVID-19Eric Topol 11:10 – 11:40 a.m.
BackgroundSusan Gregurick 11:40 – 11:50 a.m.
Acquiring and Linking Data from Different Clinical EnvironmentsLesley CurtisGeorge Hripcsak
Chris Chute
Jessie Tenenbaum
11:50 a.m. – 12:50 p.m.
Lunch Break   
Creating and Using PlatformsJustin GuinneyJoshua Denny
Melissa Haendel
Alastair Thomson
1:30 – 2:20 p.m.
Generalizability, Reproducibility, & ValidityRobert CaliffAmy Abernethy
Philip Payne
Judy Murphy
2:30 – 3:20 p.m.

Things to Consider: Governance, IRB, DACs, Eligibility

Security Confidentiality

Stan Ahalt
Sam Michael
Craig Hayn
John Wilbanks
Mike Tartakovsky
Jaime Guidry Auvil
3:30 – 4:20 p.m.
Considering Issues of Diversity and RepresentativenessMonica Webb HooperOluwadamilola “Lola” Fayanju4:30 – 5:00 p.m.
Finalize Vision and Next StepsRobert Grossman
Patricia Brennan
 5:00 – 5:30 p.m.

This page last reviewed on May 24, 2024