NIH to Host Virtual Community Workshop on Jumpstarting Access to Clinical Data for COVID-19 Research

Wednesday, July 29, 2020

A summary of this workshop is now available at https://datascience.nih.gov/executive-summary-covid-19-jumpstart-workshop.

The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.

NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.

The goals and objectives of the workshop are to:

Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
Review existing platforms within the NIH and how they approach COVID-19 use cases.
Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
Consider governance, data access committees, eligibility, and confidentiality in data use.
Understand the impact of social determinants of health on COVID-19 research.
Take forward the steps to make a call for action.

Workshop registration is on a first come, first serve basis. Register now for virtual attendance and join the Slack channel to connect with other participants.

Follow the event on Twitter and join the conversation using #NIHdata.

Jumpstart Workshop Moderators, Panelists, Speakers, and Researchers Bios

Agenda
Session	Moderator	Panelists	Duration (EST)
Opening Remarks	Warren Kibbe Patricia Brennan		11:00 – 11:10 a.m.
Keynote on COVID-19	Eric Topol		11:10 – 11:40 a.m.
Background	Susan Gregurick		11:40 – 11:50 a.m.
Acquiring and Linking Data from Different Clinical Environments	Lesley Curtis	George Hripcsak Chris Chute Jessie Tenenbaum	11:50 a.m. – 12:50 p.m.
Lunch Break
Creating and Using Platforms	Justin Guinney	Joshua Denny Melissa Haendel Alastair Thomson	1:30 – 2:20 p.m.
Generalizability, Reproducibility, & Validity	Robert Califf	Amy Abernethy Philip Payne Judy Murphy	2:30 – 3:20 p.m.
Things to Consider: Governance, IRB, DACs, Eligibility Security Confidentiality	Stan Ahalt Sam Michael	Craig Hayn John Wilbanks Mike Tartakovsky Jaime Guidry Auvil	3:30 – 4:20 p.m.
Considering Issues of Diversity and Representativeness	Monica Webb Hooper	Oluwadamilola “Lola” Fayanju	4:30 – 5:00 p.m.
Finalize Vision and Next Steps	Robert Grossman Patricia Brennan		5:00 – 5:30 p.m.