NIH to Host Virtual Community Workshop on Jumpstarting Access to Clinical Data for COVID-19 Research

A summary of this workshop is now available at https://datascience.nih.gov/executive-summary-covid-19-jumpstart-workshop. 

The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.

NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.

The goals and objectives of the workshop are to:

• Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
• Review existing platforms within the NIH and how they approach COVID-19 use cases.
• Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
• Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
• Consider governance, data access committees, eligibility, and confidentiality in data use.
• Understand the impact of social determinants of health on COVID-19 research.
• Take forward the steps to make a call for action.

Follow the event on Twitter and join the conversation using #NIHdata. 

Jumpstart Workshop Moderators, Panelists, Speakers, and Researchers Bios