Wednesday, July 29, 2020
NIH to Host Virtual Community Workshop on Jumpstarting Access to Clinical Data for COVID-19 Research
Register to Attend Virtually
A summary of this workshop is now available at https://datascience.nih.gov/executive-summary-covid-19-jumpstart-workshop.
The Office of Data Science Strategy at the National Institutes of Health (NIH) and the National Library of Medicine are hosting a virtual workshop on Jumpstarting Access to Clinical Data for COVID-19 Research on July 29, 2020.
NIH is committed to advancing research and its data science efforts to end the COVID-19 pandemic. As part of the larger NIH COVID-19 response, leadership is designing a COVID-19 Clinical Data Hub – a loosely federated system, built by researchers for researchers, to quickly make available the data necessary to address pressing COVID-19 research questions.
The goals and objectives of the workshop are to:
- Discuss the challenges and approaches to data harmonization, data source linkage, and private/public data.
- Review existing platforms within the NIH and how they approach COVID-19 use cases.
- Develop an approach to data ingestion and harmonization that will position the NIH for success against the COVID-19 pandemic.
- Understand the challenges and approaches to data tracing, appropriate representation, and avoiding selection bias.
- Consider governance, data access committees, eligibility, and confidentiality in data use.
- Understand the impact of social determinants of health on COVID-19 research.
- Take forward the steps to make a call for action.
Follow the event on Twitter and join the conversation using #NIHdata.
Please direct any questions or comments to Leanne Goldstein at firstname.lastname@example.org.
|11:00 – 11:10 a.m.|
|Keynote on COVID-19||Eric Topol||11:10 – 11:40 a.m.|
|Background||Susan Gregurick||11:40 – 11:50 a.m.|
Acquiring and Linking Data from Different Clinical Environments
|11:50 a.m. – 12:50 p.m.|
|Creating and Using Platforms||Justin Guinney||
|1:30 – 2:20 p.m.|
|Generalizability, Reproducibility, & Validity||Robert Califf||
|2:30 – 3:20 p.m.|
Things to Consider: Governance, IRB, DACs, Eligibility
|3:30 – 4:20 p.m.|
Considering Issues of Diversity and Representativeness
Monica Webb Hooper
|Oluwadamilola “Lola” Fayanju||4:30 – 5:00 p.m.|
|Finalize Vision and Next Steps||
|5:00 – 5:30 p.m.|