March Data Sharing and Reuse Seminar

Friday, March 10, 2023

Dr. Melissa Haendel and Dr. Jakob Seidlitz Dr. Melissa Haendel and Dr. Jakob Seidlitz will present "2022 DataWorks! Grand Prize Winners: Innovations in Data Sharing and Reuse" at the monthly Data Sharing and Reuse Seminar on March 10, 2023 at 12 p.m. EDT.

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About the Seminar

Dr. Haendel will discuss how academic medical centers, safety net hospitals, and community clinics across the country worked to pool and harmonize their Electronic Health Record Data to combat the  COVID19 pandemic. The National Covid Cohort Collaborative (N3C) is now the largest publicly available, national, HIPAA-limited dataset in US History. She will illustrate how a unique public-private-government governance partnership helped realize collaborative analytics at an unprecedented scale to address the infectious disease crises. She will also share how successful interdisciplinary team science and big data approaches can be used to improve scientific discovery, impact policy, treatment guidelines, and national decisions. The centralized data approach also enhanced data consistency and interoperability across health systems and thereby revealed key patterns in COVID-19 risk factors, treatment, disparities, and outcomes.

Dr. Seidlitz will focus on how hundreds of publicly accessible neuroimaging datasets, comprising over 100,000 individuals, were combined to create fully life-spanning “brain charts” of human brain development and aging. He will describe the experience of helping to spearhead this collaborative grass-roots project on the heels of the global pandemic, the emergent capabilities of these comprehensive models of the human brain, as well as obstacles and opportunities for clinical translation.

About the Speakers

Dr. Melissa Haendel is the Marsico Chair in Data Science at the University of Colorado Anschutz Medical Campus and the Director of the NCATS funded CTSA Center for Data to Health. She co-leads the Monarch Initiative, an international consortium focused on the use of semantic technologies to encode and integrate genotype-phenotype data for rare diseases diagnostics and mechanism discovery. She has more recently been involved in a number of clinical Real World Data public health initiatives that similarly leverage data integration across sectors, sources, and modalities to inform policy and research. Dr. Haendel received her BA in Chemistry from Reed College (1991), her PhD in Neuroscience from the University of Wisconsin (1999), and is an elected Fellow of the American Medical Informatics Association (2020).

Dr. Jakob Seidlitz is a research scientist at the Lifespan Brain Institute of The Children’s Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine. His research centers around using large-scale datasets spanning multiple levels of biological scale, from neuroimaging and clinical phenomics to genomics and transcriptomics, to create methods for data integration and answer fundamental questions about human development and disease. Dr. Seidlitz received his neuroscience PhD in 2020 from the University of Cambridge as part of the NIH Oxford-Cambridge Scholars Program, where he spent half of his time at the NIH.

About the Seminar Series

The seminar is open to the public and registration is required each month. Individuals who need interpreting services and/or other reasonable accommodations to participate in this event should contact Rachel Pisarski at 301-670-4990. Requests should be made at least five days in advance of the event.

The National Institutes of Health (NIH) Office of Data Science Strategy hosts this seminar series to highlight exemplars of data sharing and reuse on the second Friday of each month at noon ET. The monthly series highlights researchers who have taken existing data and found clever ways to reuse the data or generate new findings. A different NIH institute or center will also share its data science activities each month.

This page last reviewed on April 18, 2023