NIH Jumpstarting Access to Clinical Data for COVID-19 Research Showcase

Friday, August 6, 2021

12-4:30 p.m. ET

This event has been canceled.

The National Institutes of Health (NIH) Office of Data Science Strategy (ODSS) and the National Library of Medicine (NLM) are hosting a virtual “Jumpstarting Access to Clinical Data for COVID-19 Research Showcase” on Aug. 6 from 12 to 4:30 p.m. ET. This webinar will focus on accomplishments made over the past year in COVID-19 clinical data and research and will be a continuation of the Jumpstart Virtual Community Workshop held last year.

This showcase will feature progress in:

Data ingestion from a variety of data types and data sources
Data harmonization including the use of common data models and common data elements
Record linkage
Data governance, access, and use
Measures for data privacy, security, and confidentiality
Platforms and tools developed to enable COVID-19 research
Researcher access to COVID-19 clinical data and tools

Please direct any questions or comments to [email protected].

Individuals who need reasonable accommodations to participate in this event should contact the ODSS at [email protected] or the Federal Relay Service at 800-877-8339. Requests should be made at least 10 days in advance of the event.

Draft Agenda

Start Time (EDT)	Topic	Presenter
12:00 P.M.	Welcome	Patricia Flatley Brennan, R.N., Ph.D. Director, NLM, NIH
12:05 P.M.	Opening Remarks	Lawrence Tabak, D.D.S., Ph.D. Principal Deputy Director, NIH
12:20 P.M.	BioData Catalyst Accelerating Post-Acute Sequelae of COVID-19 (PASC) Research by Populating Electronic Case Report Forms from Electronic Health Records (EHRs): Application to the NHLBI MUSIC cohort – Long Term Outcomes after the Multisystem Inflammatory Syndrome in Children (MIS-C)	Alastair Thomson (Moderator) Chief Information Officer, National Heart, Lung, and Blood Institute (NHLBI), NIH
12:20 P.M.		Paul Avillach, M.D., Ph.D. Assistant Professor of Biomedical Informatics, Harvard Medical School
12:50 P.M.	Consortium for Clinical Characterization of COVID-19 by Electronic Health Record (4CE) Predicting Severity and Identifying PASC	Griffin Weber, M.D., Ph.D. (Moderator) Associate Professor of Biomedical Informatics, Harvard Medical School
12:50 P.M.		Gabriel Brat, M.D. Assistant Professor of Surgery, Beth Israel Deaconess Medical Center, Harvard University
1:20 P.M.	Break
1:35 P.M.	All of Us Research All of Us Research and PASC	Chris Lunt (Moderator) Chief Technology Officer, All of Us Research Program, NIH
1:35 P.M.	All of Us Research All of Us Research and PASC	Paul Harris, Ph.D. Professor, Department of Biomedical Informatics, Vanderbilt University Medical Center
2:05 P.M.	National COVID Cohort Collaborative (N3C) and The COVID Digital Pathology Repository Linking Imaging and EHR data for Longitudinal Research	Ken Gersing, M.D. (Moderator) Director of Informatics, National Center for Advancing Translational Sciences, NIH
		Fred Prior, M.D. Chair of Department of Biomedical Informatics, University of Arkansas for Medical Sciences
		Stephen Hewitt, M.D., Ph.D. Head of Experimental Pathology Laboratory, Center for Cancer Research, National Cancer Institute (NCI), NIH
		Janelle Cortner, Ph.D. Director, Data Management Program NCI, NIH
3:05 P.M.	Break
3:20 P.M.	Institutional Development Award (IDeA) Networks for Clinical and Translational Research (IDeA-CTR) COVID-19 Outcomes in Rural America	Michele McGuirl, Ph.D. (Moderator) Chief of Research Advancement Programs Branch, Division of Research Capacity Building, National Institute of General Medical Sciences, NIH
3:20 P.M.		Clifford Rosen, M.D. Director of Clinical and Translational Research, Maine Medical Center Research Institute
3:50 P.M.	Panel Discussion with Drs. Paul Avallich, Gabriel Brat, Paul Harris, Fred Prior, Janelle Cortner, and Clifford Rosen	Sally Hodder, M.D. (Moderator) Associate Vice President for Clinical and Translational Science and Director, West Virginia Clinical & Translational Science Institute, West Virginia University
4:20 P.M.	Closing Remarks	Susan Gregurick, Ph.D. Associate Director of Data Science and Director, ODSS, NIH
4:30 P.M.	Adjourn