Friday, August 6, 2021
12-4:30 p.m. ET
This event has been canceled.
The National Institutes of Health (NIH) Office of Data Science Strategy (ODSS) and the National Library of Medicine (NLM) are hosting a virtual “Jumpstarting Access to Clinical Data for COVID-19 Research Showcase” on Aug. 6 from 12 to 4:30 p.m. ET. This webinar will focus on accomplishments made over the past year in COVID-19 clinical data and research and will be a continuation of the Jumpstart Virtual Community Workshop held last year.
This showcase will feature progress in:
- Data ingestion from a variety of data types and data sources
- Data harmonization including the use of common data models and common data elements
- Record linkage
- Data governance, access, and use
- Measures for data privacy, security, and confidentiality
- Platforms and tools developed to enable COVID-19 research
- Researcher access to COVID-19 clinical data and tools
Please direct any questions or comments to [email protected].
Individuals who need reasonable accommodations to participate in this event should contact the ODSS at [email protected] or the Federal Relay Service at 800-877-8339. Requests should be made at least 10 days in advance of the event.
Draft Agenda
Start Time (EDT) | Topic | Presenter |
|---|---|---|
| 12:00 P.M. | Welcome | Patricia Flatley Brennan, R.N., Ph.D. Director, NLM, NIH |
| 12:05 P.M. | Opening Remarks | Lawrence Tabak, D.D.S., Ph.D. Principal Deputy Director, NIH |
12:20 P.M.
| Accelerating Post-Acute Sequelae of COVID-19 (PASC) Research by Populating Electronic Case Report Forms from Electronic Health Records (EHRs): Application to the NHLBI MUSIC cohort – Long Term Outcomes after the Multisystem Inflammatory Syndrome in Children (MIS-C) | Alastair Thomson (Moderator) Chief Information Officer, National Heart, Lung, and Blood Institute (NHLBI), NIH |
Paul Avillach, M.D., Ph.D. Assistant Professor of Biomedical Informatics, Harvard Medical School | ||
| 12:50 P.M. | Consortium for Clinical Characterization of COVID-19 by Electronic Health Record (4CE) Predicting Severity and Identifying PASC | Griffin Weber, M.D., Ph.D. (Moderator) Associate Professor of Biomedical Informatics, Harvard Medical School |
Gabriel Brat, M.D. Assistant Professor of Surgery, Beth Israel Deaconess Medical Center, Harvard University | ||
| 1:20 P.M. | Break |
|
1:35 P.M.
| All of Us Research and PASC
| Chris Lunt (Moderator) Chief Technology Officer, All of Us Research Program, NIH |
Paul Harris, Ph.D. Professor, Department of Biomedical Informatics, Vanderbilt University Medical Center | ||
2:05 P.M.
|
National COVID Cohort Collaborative (N3C) and The COVID Digital Pathology Repository Linking Imaging and EHR data for Longitudinal Research | Ken Gersing, M.D. (Moderator) Director of Informatics, National Center for Advancing Translational Sciences, NIH |
Fred Prior, M.D. Chair of Department of Biomedical Informatics, University of Arkansas for Medical Sciences | ||
Stephen Hewitt, M.D., Ph.D. Head of Experimental Pathology Laboratory, Center for Cancer Research, National Cancer Institute (NCI), NIH | ||
Janelle Cortner, Ph.D. Director, Data Management Program | ||
| 3:05 P.M. | Break | |
3:20 P.M.
| Institutional Development Award (IDeA) Networks for Clinical and Translational Research (IDeA-CTR) COVID-19 Outcomes in Rural America | Michele McGuirl, Ph.D. (Moderator) Chief of Research Advancement Programs Branch, Division of Research Capacity Building, National Institute of General Medical Sciences, NIH |
Clifford Rosen, M.D. Director of Clinical and Translational Research, Maine Medical Center Research Institute | ||
| 3:50 P.M. | Panel Discussion with Drs. Paul Avallich, Gabriel Brat, Paul Harris, Fred Prior, Janelle Cortner, and Clifford Rosen | Sally Hodder, M.D. (Moderator) Associate Vice President for Clinical and Translational Science and Director, West Virginia Clinical & Translational Science Institute, West Virginia University |
| 4:20 P.M. | Closing Remarks | Susan Gregurick, Ph.D. Associate Director of Data Science and Director, ODSS, NIH |
| 4:30 P.M. | Adjourn |
|